A Life With Trigeminal Neuralgia
I have decided to undergo a third neurosurgery. While I’ve had to make some pretty tough choices over the last 10 years, this one has been one of the most difficult. In the past, when the pain was at it’s worst, choosing surgery was more of an obvious decision. There was a desperation to build […]
Living with TN is hoping that an increase in pain is a temporary blip – a change in weather, a medication adjustment, a prolonged source of stress – and not the predictable outcome of progression that my body seems to favour. The logical side of my brain considers all of these possibilities. I know that […]
Anniversaries can fucking suck. I know that’s a bit of a harsh opening, but it’s true. July 13th, 2021 marked 8 years of living with Trigeminal Neuralgia. 8 years – 96 months – 2920 days – 70,080 hours of living with this monster. No matter the measurement of time I choose, there’s this weird phenomenon […]
I’m in my feels today. It’s one of those days where I’m overtired, stressed, and in pain, which means that things are just a little harder to deal with. The air feels heavier, the sky looks darker, the vibes are not immaculate, and the weight of the world feels greater. I’m pretty sure if I […]
I have never described myself as a creative person. I’m drawn to creative activities like writing, dancing, and making music. However, I, as a person, struggle with creativity. The left side of my brain is incredibly dominant; I’m analytical, methodical, and I measure things quantitatively, which means that I often impose rules and regulations upon […]
February 28th is Rare Disease Day, so I thought I’d take this opportunity to talk about my rare disease – Trigeminal Neuralgia. It is estimated that there are more than 300M people worldwide living with a rare disease. 4.3 in 100,000 of those people have TN. Trigeminal Neuralgia is characterized by excruciating pain, typically on […]
Over the holidays, Jon and I decided to record my cover of “Go Ego” by Eight And A Half. I wouldn’t normally dedicate a whole blog to a song I’ve been working on, but this isn’t a normal song to me. “Go Ego” followed me through the darkest and most vulnerable period of my life. […]
Hi Everyone, I think it’s about time that I did an update-style blog! To be honest, I’ve been trying to write a blog for the last month and a half, but it just hasn’t worked out. Between exhaustion from the TN event, some unresolved feels, and trying to manage life during a pandemic, writing hasn’t […]
Writing has always been my outlet. It’s how I learn, it’s my favourite way to communicate, and since becoming sick, it’s become a way for me to process the toughest of feelings. I never really planned on sharing my writing with anyone, though; that would’ve required being vulnerable and it hasn’t always been easy for […]
Well, it’s been one year since I had the surgery that drastically changed my life. Recovery has been an absolute roller coaster to say the least; every up has had a down, every twist has had a turn, and every bit of “full-speed” progress has required a brake. There have been times where I felt […]
Living With Teal 